Monday, August 10, 2009


So since they FINALLY figured out it is just SEVERE reflux they have decided to send Lexi to another Ped GI this time in Morgantown WV not the quack we went to @ UPMC Childrens in Pittsburgh. Anyhoo I was super excited about it hoping we could get her on a good treatment plan. Well they send your appoinment time/info through the mail so I got that Saturday morning and the appointment is on NOVEMBER 11th!!!! Nov frickin 11th are you kidding me she will be almost 7 months old....what the hell is the point!! For the love of god they want the poor baby to suffer that long!?! I swear I know GI's are hard to get into but lord 3 months from now!? Anyway Im calling and throwing a big stink fit today to see if I can get it moved up. Iswear it seems like you cant get anything done unless you make yourself look like an idiot by throwing a big ole fit!! Wish me luck I will let you all know how it goes!

Tuesday, August 4, 2009

Great Answers Finally.

We woke up @ 4am yesterday and starting getting ready. We were on the road by 15 til 5. Lexi slept the entire driv which was awesome since even if she woke up I couldnt feed her. Once we got there we headed to the Day Surgery Registration and registered Lexi. We only waited about 10 minutes before they took us to pre-op. Once we got back there her 2 anestesiologist (sp) came back and talked to us, then her Otolarynologist and the other ENT's. Then @ 7:15 am (earlier than expected) they took her back. I bawled like a baby. It was so scary to see my baby be taken back and I couldnt go with her. They told us she could be back there for about an hour. The nurse came and got us 20 minutes later and declared her procedure done! Once we got back into recovery they told us everything looked great ie: no lesions,clefts,or cysts!!! BUT........ she has SEVERE SEVERE reflux. One of the worst cases Dr.R had seen. He said the awful raspy gasping sound is because her vocal chords are extremely swollen and irritated and that her throat and esophogaus is irritated as well. The gagging, choking and coughing is very common in reflux that is this severe. We knew that Lexi had reflux but it was NEVER thought to be the cause if all this. Now that we know exactly how bad it is we can treat it better and get on top of this. The best part is....we know this noise is NOT serious, is NOT permanant and WILL get better as her reflux is controlled!!! Thank God!!! And thank you all for your prayers.
I plan to keep blogging on here to track Lexis prgress with her awful reflux. She will go to her regular Ped. and also GI. So I will keep everyone updated on her reflux condition as we try to gain control!

Sunday, August 2, 2009

Should be sleeping!

Well here it is almost mid-night the night before or technically the day of Lexi's procedure. I CAN NOT sleep. Main reason of course is obvious Im nervous for tommorow. Second reason my 1 yr old Madison is at Grandmas tonight and Ive only stayed away from her over night when Lexi was born! Im just a mess tonight! Anyway I will update as soon as possible tommorow. Please pray we find answers tommorow and that it isnt bad and that she suffers no complications during the procedure! Off to lay awake in bed...errr I mean sleep.